A camp, a car and the chance to change a young cancer patient’s life

A cancer diagnosis can change how the world looks to anyone but it is especially difficult for a teenager or young adult who is still trying to figure out who they are. No matter how loving and supportive family members and friends are, that diagnosis can be a lonely place that no one else understands.

Chris and Karen Hines walked beside their daughter Cassie through every step of her diagnosis and treatment for a rare form of liver cancer. But like any teenager, Cassie wanted to talk to someone who was going through what she was going through, someone who was her own age. She found that peer support at a camp for teens and young adults with cancer called Camp Mak-A-Dream in Montana.

“That’s where she found the peer support she needed to help reenergize her in her battle and pretty much gave her at least another two years of life,” said Chris Hines. “And as a parent, there’s nothing I could have asked for more than that.”

Cassie died in 2012 and shortly afterward her family started the Cassie Hines Shoes Cancer Foundation (CHSCF) to honor her desire to help other teens facing a cancer diagnosis. The foundation’s mission is to help young people, ages 16-30, find the social and peer supports they need to tackle their cancer journey head on and to help them take control of their lives.

“It is an advantage for young adults with cancer to seek support individually and with their peer group in the cancer community,” said Kathleen Hardy, oncology social worker at the Barbara Ann Karmanos Cancer Institute’s Weisberg Cancer Treatment Center in Farmington Hills, Michigan. “It is fun, inspiring and a way for them to become leaders and mentors for others.”

Peer support, especially cancer camps, is a major focus of the foundation. The web site offers a list of camps for cancer patients, guidance on scholarships and other financial assistance, and a list of resources and organizations that support young adults with cancer, such as Karmanos’ Young Women’s Support Group led by Hardy. CHSCF recently held its second annual Sample Camp, a one-day adventure camp that offers a taste of what a full week at a cancer camp could be like.

1969 Chevrolet Camaro convertible

1969 Chevrolet Camaro convertible

To make camp scholarships and programs like Sample Camp possible, the foundation holds a variety of fundraising events. Just in time for the Woodward Dream Cruise, the foundation is holding a raffle to win a fully restored, candy apple red, 1969 Chevrolet Camaro convertible on August 16, 2014. Tickets are $25 and can be purchased on the CHSCF website.

To read Cassie’s story, connect with other young adults who are cancer survivors, or learn more about the foundation’s programs, visit the Cassie Hines Shoes Cancer Foundation.

What’s a clinical trial? You may not know until you need one.

State Rep. Gail Haines (R-Waterford) with Gerold Bepler, M.D., Ph.D., president and CEO, Karmanos Cancer Institute

State Rep. Gail Haines (R-Waterford) with Gerold Bepler, M.D., Ph.D., president and CEO, Karmanos Cancer Institute

State Rep. Gail Haines (R-Waterford) hosted the second annual Clinical Trials Awareness Day at the Capitol in Lansing on June 4, 2014. Karmanos’ own President and CEO Dr. Gerold Bepler was invited to speak at the press conference and present information to legislators about the more than 340 clinical trials open to Karmanos cancer patients. According to Rep. Haines, 4,340 clinical trials are being studied in Michigan for diseases ranging from diabetes to mental illness.Clinical trials are much discussed in the medical community, though they aren’t likely to be a  topic of conversation at the average family dinner table. But maybe they should be, because clinical trials are what fuels new treatments that fight cancer, control heart disease and prevent asthma attacks.

 What exactly is a clinical trial?

Clinical trials come in phases and, at least at Karmanos, they begin in a medical research laboratory. It can take years of trial and error in the lab before a drug or treatment protocol appears to be promising in treating a particular type of cancer. Once a potential treatment is identified, its toxicity is tested. Based on those results, the drug or other intervention is submitted to the U.S. Food and Drug Administration for approval for a Phase I clinical trial, the first time it will be tested in people.

Clinical trials are sometimes called translational therapeutics because they translate treatments from the laboratory environment to the clinic or hospital where patients are cared for. Eligible patients are carefully screened and then educated about what it means to participate in a clinical trial. At Karmanos, every patient who is accepted into a Phase I trial receives the treatment. There are no placebos or control groups. And every patient is closely monitored for side effects and response to treatment.

Phase I trials are usually limited to a small group. The information gathered in the first trial about dosages and potential side effects is then used in a larger Phase II trial of up to 100 patients that often focuses on a particular type of cancer. Next comes a Phase III trial where the new treatment is compared with the current standard of care for that disease. Once the treatment has been approved for standard use, Phase IV trials study long-term effectiveness and safety.

Why does it matter if a clinical trial is available near me?

Continue reading ‘What’s a clinical trial? You may not know until you need one.’

Slather on the sunscreen — it might be your ounce of cure

By: Lori Eaton, Internal Marketing & Communications Associate, Barbara Ann Karmanos Cancer Center

Copyright: Christian Noval / Dreamtime Stock Photos

Copyright: Christian Noval / Dreamtime Stock Photos

My mother always used to say an ounce of prevention equals a pound of cure and though I ignored her advice many times at my peril, I know that when it comes to protecting my skin from the sun, it’s advice worth listening to.

Just a few days ago, my father mentioned that he visits a dermatologist every six months to have the new basal and squamous cells that have appeared on his hands and face removed. I’ve begun to wonder if that is in the cards for me as well.

According to the Skin Cancer Foundation, skin cancer is the most common form of cancer in the U.S. with more the two million people diagnosed annually. There are more new cases of skin cancer diagnosed every year than cases of breast, prostate, lung and colon cancers combined. One in five Americans will develop skin cancer in their lifetime. It’s the price we pay for our love affair with the sun.

Basal cell carcinoma is the most common type of skin cancer (8 out of 10 skin cancers) with squamous cell carcinoma a distant second (2 out of 10 skin cancers). Both of these cancers typically appear on sun-exposed areas of the body – face, ears, neck, lips and backs of hands. Melanoma accounts for less than five percent of skin cancers but causes the vast majority of deaths. Melanomas can occur anywhere but are most likely to appear on chest and back in men and legs in women.

That ounce of preventive advice I was talking about before is probably pretty obvious now. The sun we Michiganders love so much doesn’t love us back. Protecting our skin from sun exposure is definitely in our best interest but that doesn’t mean we have to stay inside.

“Slip! Slop! Slap!® and Wrap”

The American Cancer Society suggests that we “Slip! Slop! Slap!® and Wrap” to protect our skin from the harmful UV rays that do most of the damage.

  • Slip on a shirt – there are companies that make comfortable, lightweight clothing that still protect against UV exposure
  • Slop on sunscreen – 30 SPF (sun protection factor) or higher is recommended, any sunscreen with lower than 15 SPF must now include a warning label that states it only prevents sunburn not skin cancer. Be sure to check expiration dates when you dig out last summer’s sunscreen.
  • Slap on a hat – something with a 2-3 inch brim all the way around works best to give coverage to ears, nose and back of the neck
  • Wrap on sunglasses to protect the eyes and the skin around them

Another good choice is to become a shade lover. This is my go-to solution and allows me to spend as much time as I want to outside in warm weather. It’s even more important to seek shade between 10 a.m. – 4 p.m. when the sun is strongest.

Early detection saves lives

If your miss spent youth was spent lying in the sun like mine was, two of the most important things you can do is give yourself a once-over once a month and have a full-body skin exam performed by a dermatologist or health care professional once a year.

For your once-a-month exam, grab a mirror and follow the five steps the experts here at Karmanos recommend:

  1. Examine your body front and back in the mirror, then lift your arms and look at your left and right sides.
  2. Bend your elbows and look carefully at your forearms then upper underarms and finally palms and backs of hands.
  3. Look at the backs of your legs and feet; check the spaces between your toes and the soles of your feet.
  4. Examine the back of your neck and scalp with a hand held mirror; part your hair and take a closer look.
  5. Finally, check your back and buttocks with a hand held mirror.

What are you looking for exactly?

  • A change in the number, size, color or surface of a mole or darkly pigmented spot.
  • A new growth or a sore that does not heal.
  • The spread of pigmentation past the edge of a mole or mark.
  • Moles with a change in sensation – itchiness, tenderness or pain.

While changes in your skin aren’t always a sign of cancer, it is important to see your health care provider if any changes last longer than two weeks. Remember, cancer is most curable in its early stages.

Talk to your doctor about treatment options

Basal cell and squamous cell skin cancers and pre-cancerous cells are frequently treatable by a dermatologist with minor surgery or other types of localized treatment. If the cancer is more advanced or if you have melanoma or another form of skin cancer, you may need to see a specialist, such as a surgical or medical oncologist. What’s most important is that you see your doctor to find out what treatment is right for you.

Even advanced stages of skin cancer are treatable, thanks to researchers and physicians who are working hard to find a cure. Recently, WDIV Local 4 Health Reporter Dr. Frank McGeorge talked with Heidi Gross, a pharmacist from Midland, Mich., who had no idea that the lump on her leg was metastatic melanoma. Under the care of Lawrence Flaherty, M.D., leader of Karmanos’ Melanoma Multidisciplinary Team, Heidi joined a Phase I clinical trial. After 18 months, she is doing well. Watch her story now.

Now that spring is finally here and summer is just around the corner, plan to enjoy the sun wisely. And yes, I know. I’m starting to sound just like my mother.

Are you ready to “pink” your ride?

By Lori Eaton, Internal Marketing & Communications Associate, Barbara Ann Karmanos Cancer Center

ImageLast year, the Michigan legislature passed Senate Bill 101, and on December 19, 2013, Governor Rick Snyder signed it into law. Seems like old news, right? Just bear with me for a few more sentences.

The law establishes a “pink ribbon” license plate in Michigan that will help raise awareness about breast cancer and help fund the Michigan Breast and Cervical Cancer Control Program (BCCCP), which provides low income women around the state with vital screening and treatment. Additional support for this program is sorely needed as both federal and state funding has been severely reduced.

So here’s the news.

The pink ribbon license plates will be available to order beginning in early June. And the best way to learn more is to stop by the Michigan Secretary of State mobile van at Chene Park during the Komen Detroit Race for the Cure® on June 7. (It’s a great place to register to vote if you need to do that, too.)

The pink ribbon license plate will be added to the list of specialty cause license plates available through the Michigan Secretary of State’s office. The $15,000 start-up fee for the plate was raised privately by State Senator Glenn S. Anderson (D-Westland), the bill’s sponsor. The cost of the plate for car owners who elect to purchase it will be $35, with $25 of that going to the BCCCP. One hundred percent of the $10 renewal fees will benefit the BCCCP.

Why is the BCCCP so important? Simply put, it saves lives.

Early detection through screening is an extremely effective tool in fighting breast and cervical cancers. However, low-income women who are uninsured or underinsured often don’t get screened. The result is that these women are 41 percent more likely to be diagnosed with late-stage breast cancer. And a late stage diagnosis means a deadlier cancer.

The Barbara Ann Karmanos Cancer Institute is responsible for administering the BCCCP in Wayne County. Since 1992, Karmanos and the Wayne County BCCCP have provided nearly 100,000 free breast and cervical cancer screenings to local women. In addition to screening services, BCCCP provides follow up and treatment through a network of clinics and hospitals. They also offer personal support to women who need treatment and help reduce any barriers to care.

Pink your ride and help save lives! Learn more at the Komen Detroit Race® at Chene Park on June 7.

Supporting breast cancer research in memory of a beloved wife and mother

By Stuart Baskin

Organizer of the “Shave to Save” fundraiser to benefit breast cancer research at the Barbara Ann Karmanos Cancer Institute

I’d like to tell you about my wife, Janet. 

The first time I saw her was amazing — seeing her long flowing blonde hair, her beautiful green eyes and her smile. I think my heart truly skipped a beat.  We sat together at dinner at our five-year high school reunion and soon after started dating. 

One thing led to another and before I knew it, we were married and expecting our first child, Robert Andrew.  Life was good. We had a beautiful home, good jobs and the start of an amazing family.

Janet Baskin

Janet Baskin

Like almost every fairy tale though, things changed drastically – and it was not from a poison apple. It was from a lump Jan found in her left breast.  Sometimes I think a poison apple would have been easier to deal with. 

At the time, Jan was a registered nurse with a Bachelor of Science in nursing. She knew what the lump could mean.  She made an appointment with her doctor and he told her it couldn’t be anything to worry about, that she was only 30 years old. The doctor advised her to wait 45 days and see if the lump dissipated on its own.

Like most people, we heard what we wanted to hear and followed doctor’s orders. Forty-five days went by and Jan went back to her doctor.  The lump had not dissipated, so he scheduled a needle biopsy, with the continued assurance that it couldn’t be anything serious, that Jan was too young.

So the day of the needle biopsy arrives. We thought, no big deal – it’s just a needle being stuck into a growth in her breast. If you’ve ever been through this type of procedure, I don’t need to tell you the hardest part is waiting for results. Her doctor took a sample of her cells and we waited a week to receive the results. 

We stayed positive and just waited. After all, we had nothing to worry about — Jan was only 30.  Time passed and we went back to the doctor to receive the results. The information was not the most positive — the needle biopsy came back as “highly suspect.” 

So what does that mean?  Since conclusions weren’t definite, Jan’s doctor recommended a lumpectomy.  Again, he said that he could perform this easily, that just a small amount of material would be cut away — out with the bad and in with the good.  So we scheduled the procedure and life went on. 

The procedure day arrived.  We got there and everything went just as planned.  Jan did well and we headed home.  Again, more waiting occurred and that was tough. 

Test results finally came in and we found out that the lump was not something we could let dissipate, that in actuality, it was breast cancer. 

I don’t know how many of you have heard those words or listened to the ominous tone of the doctor’s voice when he or she tells you or someone you love that they have cancer.  It’s devastating.  Everything hits you at once and your life changes in an instant. 

From there, Jan underwent a mastectomy and removal of her lymph nodes.  She was a practical woman and asked to have both breasts removed. Doctors told her no, that there was no need for something so drastic, that her suggestion was ‘silly talk.’ 

Today, I believe a radical mastectomy is standard protocol to treat the type of breast cancer Jan had.  We scheduled the surgery and realized that this procedure is much more serious than the other procedures, that it’s meant to treat a serious problem and could turn out to be very bad. 

The surgery went well.  Jan’s breast was removed and they found three out of her nine lymph nodes had been compromised.  The good news, however, was her disease was still considered Stage I breast cancer and her prognosis was good. 

Jan took time to heal and I kept telling her that it’s a walk in the park, we have this disease under control, that we caught it early and everything is going to be fine. I told her to stay positive and reassured her that life was good. 

I read a saying once:  “Cancer may leave your body but it never leaves your mind.”  It is such a scary thing hearing those terrible words — that you have cancer — that you are always watching and looking for signs that it may have returned, always hoping that it does not come back. 

The good news is our life moved forward. Things seemed back to normal and we made it past the five year mark.  That’s the big number — five years and we made it! 

Jan returned to school and became a nurse anesthetist.  She worked so diligently, studied so hard and graduated with honors.  It then came time to consider having more children. We already had a wonderful baby boy and wanted more kids. Unfortunately, Jan’s hormonal receptors tested positive. What that meant was no more kids. The doctors did not want her hormones to become elevated. 

So what options did we have?  We decided to adopt. My son wanted a brother and I wanted a daughter, so we started the paperwork to adopt two children from Russia. 

Life was grand. Jan had started her new job and our house was full of children and love.  And then it happened. I will never forget that day. Jan called me home from work to talk.  She was having some vision troubles and had made an appointment with her eye doctor.  She sat me down and proceeded to explain her vision difficulties were from cancer tumors on her optic nerves. 

We were devastated. We knew the cancer was back and we suspected it had metastasized. We cried, we hugged and we hoped for the best.

Jan’s doctors tested, they scanned, they poked and what they found was not good.  Her cancer had spread. It was now in the meninges of her brain, in her lungs, in her bones and in her eyes. 

Jan, 36 at the time of her cancer recurrence, was a strong woman. She didn’t want to know a prognosis because it didn’t matter to her. She was going to stay and fight as long as she could.  I would like to tell you that she wanted to fight to be with me, but I know that she had her kids and that they were her driving force. 

I was not as strong as Janet. I wanted to know what was going on and I needed to hear how good or bad her situation was.  Her oncologist was amazing. All I had to do was call and he would give me an update. I did not have to ask.  What I can tell you is that my wife’s situation was bad. Her oncologist told me she had anywhere from two months to two years to live, but sooner or later, the cancer would get ahead of the chemotherapy. 

As I mentioned, Jan was a fighter. Over the next six years, she had full and focused brain radiation, radiation to her eyes, a second mastectomy, a bone marrow transplant, which was performed at the Barbara Ann Karmanos Cancer Center, and chemotherapy every week, which lasted for the full six years. To top it all off, the drugs put her into early menopause. 

I am sorry to say that we lost a perfect soul, a caring mother and a courageous woman, but she did not go without leaving all of us an example to follow. Jan, who was 42 when she passed, she taught me how to cherish each and every moment and how to enjoy each breath. Most of all, she taught me how to live!

I found myself a widowed father of three kids who had just lost his wife after a long and difficult battle with a terrible disease. At first I was lost. I had a full plate with three kids to raise. I also had this helpless feeling. 

It’s hard to put it into words, but mostly I felt defeated.  I had to watch my love — my wife and life partner — fight this terrible disease and I knew one day it would win. 

Each week, doctors put poison into her veins, hoping it would keep her cancer at bay. I knew that I could only offer comfort and support. I could not fix her, nor could I heal her. 

Jan and I used to participate in the Komen Detroit Race for the Cure, which we would both walk together. One year I decided I was going to run in honor of Janet.  I had never been a runner but had a goal and a passion from within. 

I started like most novice athletes and ran a block, then two, and finally worked up to running my first 5K race. So many nights I would go off for a few-mile run to clear my mind. Running became my therapy, my saving grace, and I found my mission — raising funds to honor my wife.  For the last 11 years, I have been raising funds in her memory through my “Shave to Save” fundraising event.

Detroit Iron Team

Detroit Iron Team

This year, the “Shave to Save” event will take place from 5-9 p.m., Saturday, Aug. 24 , at Black Finn in Royal Oak and is being put on with my Detroit Iron Triathlon Team. There is a $20 donation entrance fee at the door, which will include drink specials, free appetizers and a silent auction. Detroit Iron team members, myself included, will shave their heads as part of the event. Aiding in those shaving efforts are two young ladies who are also cancer survivors. One hundred percent of the proceeds will benefit breast cancer research at Karmanos. The team chose Karmanos as a beneficiary because of the wonderful experience Jan had undergoing her bone marrow transplant at the center.

My hope is that one day, by supporting breast cancer research and the commitment to finding a cure, a father will not have to look into the eyes of his children and tell them their mother has passed away from cancer.

Taking inspiration from a friend to fight breast cancer

Liz Wright with a "friend" at the Komen Detroit Race for the Cure

Liz Wright with a “friend” at the Komen Detroit Race for the Cure

By Liz Wright, Member, Communications Committee, Komen Detroit Race for the Cure

As a runner of half marathons and the occasional full marathon, I consider myself to be a healthy person.  I sneak an extra cookie (or three) every now and again, but overall I feel like I make good choices. 

We runners surround ourselves with other like-minded individuals, swapping homemade granola recipes and debating just how many servings of leafy green vegetables one needs in a 24-hour period.  It can border on silly at times but as a runner, I’ve become very aware of what I put inside my body. The level of exercise I put my body through has a huge effect on my race training. 

Sometimes you feel like you have all the answers. That is, until reality decides to surprise you. 

A 35-year-old friend of mine, a personal trainer and marathoner who ran at least one mile every single day in the first half of 2012, has breast cancer. In my mind, she shouldn’t. The math doesn’t add up. She runs races year-round. She motivates and promotes health and wellness to her dedicated and loyal client base. She exercises for a living, for goodness sake!  But life happens and cancer happens. 

People who don’t have a reason to get cancer sometimes end up with cancer.  Let’s be honest – no one who is diagnosed with cancer has a good reason for having the disease.  People don’t hear about a friend or family member with a recent diagnosis and say, “Yeah, I saw that one coming.  Doesn’t surprise me.” 

July will be the one-year anniversary of her diagnosis.  Her treatment menu by the summer will be as follows – a double mastectomy, chemotherapy, tissue expansion, radiation, breast reconstruction and a hysterectomy.  And through all of this, she’s continued to work and be a mom, wife, loving friend and supporter to all her clients. 

She’s a hero and she doesn’t even need a cape.

She’s kept a Tumblr (a social media Web site) of her struggles and victories since the first day of her diagnosis.  With wit, grace, sadness and gratitude, she writes about her journey through every treatment and surgery.  She guides us through the disgusting parts and the hopeful parts and the intimate parts.  She is sharply funny, constantly finding humor in the most unlikely places while being brutally honest about the harshness of her treatments. 

Through all of this, she fights and stays positive. She even had the phrase ‘stay positive’ tattooed on her wrist post-diagnosis.  She fights every day with a sense of purpose.  Physically and mentally, she gets stronger with each passing week.  She recently posted about getting back to her old activities with her friends – “Every day, in every way, I am closer to being me.” 

Breast cancer can make you feel like less of a woman and can steal parts of your identity away from you. She’s taught me that opening yourself up and sharing the deepest parts of yourself is a difficult but important part of the healing process. Watching my friend climb out of this pit of self-doubt and uncertainty into the light of her full life is inspiring. 

Her journey is the reason why I choose to support the fight against this disease. It’s up to all of us to make a choice to fight alongside our friends, mothers, sisters and daughters as we envision a world without breast cancer!

The Barbara Ann Karmanos Cancer Institute is the presenting sponsor of the 22nd Annual Komen Detroit Race for the Cure. To learn more about the Race and to register, visit karmanoscancer.org/KomenDetroit. You may also e-mail raceforthecure@karmanos.org or call 248-304-2080 or 1-800-KARMANOS (1-800-527-6266).  

Doing her part to promote breast cancer research at Komen Detroit Race for the Cure

Liz Wright

Liz Wright

By Liz Wright
Member, Communications Committee, Komen Detroit Race for the Cure

Many times in life, where you start isn’t always where you end up.

This couldn’t be truer when it comes to my involvement with the Susan G. Komen Detroit Race for the Cure, scheduled for May 18 at Comerica Park. As a young adult just graduating from college, cancer had never touched my life. Sure, I knew of people who knew people who had a sister or a father with the disease. I listened quietly, lending a friendly ear and nothing more.

It wasn’t until breast cancer touched my life personally that I felt a responsibility to do what I could to fight this disease. I learned that my boyfriend’s mother (now my mother-in-law) was a cancer survivor and watched first-hand as my aunt fought breast cancer and won. I was, however, not so blind as to believe everyone who is diagnosed with breast cancer survives his or her struggle.

It was then that my boyfriend (now my husband) and I decided to participate in our first Komen Detroit Race for the Cure in 2006. Not only was it a 5K through the city we love, we knew that the money we raised was going to local screening programs, research and education.

When we arrived at Comerica Park, I was blown away by the energy and the buzz in the air — tens of thousands of men and women in a sea of pink laughing, dancing, alive with the promise of a cure. It was also a time to reflect and never forget those that we lost too soon. We ran our hearts out and I made the decision then and there to make this an annual event.

Continue reading ‘Doing her part to promote breast cancer research at Komen Detroit Race for the Cure’



Follow

Get every new post delivered to your Inbox.

Join 3,532 other followers